June 2019

Monthly Archive

Environmental factors affecting self-management of chronic hepatitis B from the patients’ perspective.

Posted by on 27 Jun 2019 | Tagged as: Hepatitis B Alternative Medicine, Others

Related Articles Environmental factors affecting self-management of chronic hepatitis B from the patients’ perspective. J Clin Nurs. 2019 Jun 25;: Authors: Lin WS, Lee TT, Yang YH, Mills ME Abstract AIMS AND OBJECTIVES: To explore factors affecting self-management experiences of patients with chronic hepatitis B within their social and cultural environments. BACKGROUND: Many cases of hepatitis B are not detected until they are in end-stage liver disease. Despite an increasing trend of indicating a lack of health awareness as the reason, studies have rarely referred to the personal, social and cultural environmental constraints from patients’ perspectives. DESIGN: A descriptive qualitative study. METHODS: Forty-seven adults diagnosed with chronic hepatitis B were interviewed in a private area of a hospital clinic in Taiwan in 2018. Four open-ended questions relating to care self-management included: disease detection; disease control; preventive care; and, perceptions of screening and follow-ups. Data were examined using content analysis. This study also adhered to the consolidated COREQ guidelines. RESULTS: Five main themes emerged: personal experiences, awareness of occupational health, the availability of conventional treatment, cultural beliefs about healthcare, and family roles. Findings of note were that some participants became aware that they had never known the difference between follow-up for hepatitis B and regular adult/laborer health checks due to a lack of information within their living environment. Many participants added alternative treatments to their self-management strategies and others frequently ignored follow-up appointments because of different cultural health beliefs. CONCLUSIONS: Patients’ disease self-management perceptions are driven by dynamic influences suggesting that development of policies integrating personal, family, social, and cultural environmental factors could enhance individual screening and subsequent health behaviors of patients with chronic hepatitis B. RELEVANCE TO PRACTICE: Adding person-centered case management of hepatitis B could enhance patients’ adherence to follow-up. Attention should be given to increasing provider awareness of the influence of their own attitude and communication on patients’ participation in self-management. This article is protected by copyright. All rights reserved. PMID: 31240796 [PubMed – as supplied by publisher]

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Environmental factors affecting self-management of chronic hepatitis B from the patients’ perspective.

Care of adolescents and young adults with cancer in Asia: results of an ESMO/SIOPE/SIOP Asia survey.

Posted by on 25 Jun 2019 | Tagged as: Hepatitis B Alternative Medicine

Related Articles Care of adolescents and young adults with cancer in Asia: results of an ESMO/SIOPE/SIOP Asia survey. ESMO Open. 2019;4(3):e000467 Authors: Li CK, Dalvi R, Yonemori K, Ariffin H, Lyu CJ, Farid M, Gonzales-Santos JRN, Zhou Q, Bielack S, Brugieres L, Blondeel A, Essiaf S, Peccatori FA, Jezdic S, Stark DP, Douillard JY, Saloustros E, Mountzios G Abstract Background: Adolescents and young adults (AYAs) with cancer require dedicated management encompassing both adult and paediatric cancer services. Following a European survey, the European Society for Medical Oncology, the European Society for Paediatric Oncology and the Asian continental branch of International Society of Paediatric Oncology undertook a similar survey to assess AYA cancer care across Asia. Methods: A link to the online survey was sent to healthcare professionals (HCPs) in Asia interested in AYA cancer care. Questions covered the demographics and training of HCPs, their understanding of AYA definition, availability and access to specialised AYA services, the support and advice offered during and after treatment, and factors of treatment non-compliance. Results: We received 268 responses from 22 Asian countries. There was a striking variation in the definition of AYA (median lower age 15 years, median higher age 29 years). The majority of the respondents (78%) did not have access to specialised cancer services and 73% were not aware of any research initiatives for AYA. Over two-thirds (69%) had the option to refer their patients for psychological and/or nutritional support and most advised their patients on a healthy lifestyle. Even so, 46% did not ask about smokeless tobacco habits and only half referred smokers to a smoking cessation service. Furthermore, 29% did not promote human papillomavirus vaccination for girls and 17% did not promote hepatitis B virus vaccination for high-risk individuals. In terms of funding, 69% reported governmental insurance coverage, although 65% reported that patients self-paid, at least partially. Almost half (47%) reported treatment non-compliance or abandonment as an issue, attributed to financial and family problems (72%), loss of follow-up (74%) and seeking of alternative treatments (77%). Conclusions: Lack of access to and suboptimal delivery of AYA-specialised cancer care services across Asia pose major challenges and require specific interventions. PMID: 31231565 [PubMed]

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Care of adolescents and young adults with cancer in Asia: results of an ESMO/SIOPE/SIOP Asia survey.